On Tuesday, a group of patients living with a rare degenerative disease, Pompe Disease, has attempted to hail Prime Minister in order to avail seize some special funding. Up till now, there are six identified cases of the disease in New Zealand. Individuals living with the uncommon health condition suffer identical symptoms of muscular dystrophy.

Consequently, patients who managed to cover even very small distance with help of wheelchair or walking stick have struggled hard to take the matter to Mr. Key in Wellington, although they failed to do so. Mr. Key was not in Wellington and therefore, the security guards directed them to leave the premises, after discussion with Prime Minister's staff.

Under the spell of the move, the disease victims outlined policies to urge the Prime Minister to allocate good financial aids, around $2 million per person annually, for encouraging Myozyme, the enzyme replacement therapy.

While briefing the illness, an expert from the Organization for Rare Disorders, John Forman expressed disappointment that the needed treatment for the disease is very expensive. It’s difficult to avail the treatment, especially for low income sufferers. With passage of time, patients are likely to experience increased muscle weakness along with complications in respiratory failure, and eventually death.

However, the group has succeeded in availing a discussion with Grant Robertson, the health Spokesperson of Labour Party. Mr. Grant Robertson addressed the group members and marked it as an unfortunate and disrespectful decision where government has not spared a single minute to listen their problem.

"That promise has been broken. No-one is pretending this is an easy issue to deal with but the Government set the expectation and it has not delivered", Mr. Robertson added further.